Axial Spondyloarthritis: Patient-Reported Impact in Europe
Axial Spondyloarthritis: Patient-Reported Impact in Europe
This open access book provides an overview of the International Map of Axial Spondyloarthritis (IMAS) project -focusing on Europe-, a wide-ranging, multi-disciplinary collaboration between academic groups, Health Care Professionals (HCPs), patient organizations and Novartis. IMAS was conceived to improve knowledge of Axial Spondyloarthritis (axSpA) and raise awareness of its heavy burden globally. By asking more than 2,000 patients across Europe about the impact of axSpA on multiple aspects of their life, the full extent of this disease was investigated from a direct patient perspective. This allowed a unique understanding of how living with axSpA affects the daily lives and well-being of patients, and how this varies between European countries.
Axial Spondyloarthritis: Patient-Reported Impact in Europe highlights opportunities for progressing quality patient care to be applied to health services globally. HCPs, policy makers and patients willfind this book to be an indispensable resource for improving the understanding of this chronic condition, including patients' clinical outcomes, the protection of those at risk of psychological distress, and the economic burden on patients and society.
Introduction
Objectives.-Methodology
Demographic Profile of Survey Respondents
Diagnosis
Physical Health
Psychological Health
Social Support
Healthcare
Habits and Lifestyle
Employment Status and Productivity
Fears and Hopes
IMAS European Survey Strengths and Limitations
Glossary of Terms.
Axial Spondyloarthritis: Patient-Reported Impact in Europe highlights opportunities for progressing quality patient care to be applied to health services globally. HCPs, policy makers and patients willfind this book to be an indispensable resource for improving the understanding of this chronic condition, including patients' clinical outcomes, the protection of those at risk of psychological distress, and the economic burden on patients and society.
Executive Summary
About the AuthorsIntroduction
Objectives.-Methodology
Demographic Profile of Survey Respondents
Diagnosis
Physical Health
Psychological Health
Social Support
Healthcare
Habits and Lifestyle
Employment Status and Productivity
Fears and Hopes
IMAS European Survey Strengths and Limitations
Glossary of Terms.
Garrido-Cumbrera, Marco
Navarro-Compán, Victoria
Bundy, Christine
Mahapatra, Raj
Makri, Souzi
Delgado-Domínguez, Carlos J.
Plazuelo-Ramos, Pedro
Poddubnyy, Denis
ISBN | 978-3-030-97608-8 |
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Artikelnummer | 9783030976088 |
Medientyp | Buch |
Auflage | 1st ed. 2022 |
Copyrightjahr | 2022 |
Verlag | Springer, Berlin |
Umfang | XXI, 109 Seiten |
Abbildungen | XXI, 109 p. 42 illus. in color. |
Sprache | Englisch |